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Visit the MaineHealth Cancer Resource Center

Maine Medical Center Cancer Institute

Cancer Risk and Prevention Clinic

The Cancer Risk and Prevention Clinic at Maine Medical Center’s Cancer Institute is for people who are concerned about their own risk or other family members’ risk of cancer. Although most cancers are not "inherited”, some families have a higher risk of cancer and could benefit from early detection or steps to lower their risk. The experts at the clinic help patients and their families understand how their genes may affect their risk for cancer and how they can manage this risk.

Genetic testing is helpful for some families. For others, a thorough risk assessment and genetic counseling provide enough information to make a plan for lowering their risk of cancer. We help you to understand these options and to choose the best one for you and your family.

The clinic provides counseling for all types of cancer including: familial colon cancer, breast cancer, ovarian cancer, cancer of the uterus, prostate cancer, melanoma, thyroid cancer, sarcoma, childhood cancers and other less common tumors.

Visits take 1 ½ - 2 hours, including an overview of cancer genetics, a review of medical and family history, and counseling on ways you and your family can lower the risk of cancer. We ask patients to complete and return a family history form before their visit so that the clinic’s doctor and genetic counselor are aware of the issues important to the family before the visit.

Our Staff

Amanda Lamb, ScM, CGCAmanda Lamb is a board-certifed genetic counselor. She graduated from Bowdoin College in 2004 and completed a Master's program in genetic counseling at the Johns Hopkins School of Public Health and the National Human Genome Research Institute. Amanda joined Maine Medical Center's Cancer Risk and Prevention Clinic in 2010.
   
Susan Miesfeldt, MDDr. Susan Miesfeldt
Susan Miesfeldt has been Medical Director of MMC’s Cancer Risk and Prevention Clinic since 2004. She received her MD from Tufts School of Medicine, and subsequently completed an Internal Medicine residency at the University of Virginia, and a Hematology and Oncology fellowship at the University of Michigan where she was a Howard Hughes Research Fellow. She developed and directed the University of Virginia Health Science Center’s Cancer Genetics Program from 1996-2003 before her appointment as an attending physician at Maine Medical Center.

Information for Providers

Information for Patients 

Scroll down through this content, or click on a link below to go directly to a section.

Scheduling Your Visit

You can schedule a visit by calling the Cancer Risk and Prevention Clinic at 207-396-7787.  The clinic is held on Monday and Tuesday afternoons, Wednesday mornings, and Friday mornings.

Before Your Visit

We ask that you complete a personal and family history form and to gather medical records before coming to the clinic. We will mail these forms to you after scheduling your visit.

Personal and Family History Form

This form asks questions about the cancers in your family and how old a person was when he or she had it.  It is important that you try to complete this form before your clinic visit so that we can give you an accurate risk assessment.  You can also download this form by clicking here.

Medical Records

If you have had a cancer or pre-cancerous finding, please send these medical records (such as pathology reports or colonoscopy records) to our clinic before your visit.  We also ask you to contact relatives who have had cancer, and if possible, to get their medical records.  We know that it may not be possible to gather these records before your visit.  We will provide genetic counseling based on the information that you give us. If more records are needed, we can help you to get them after your visit. 

Cancer Risk and Prevention Clinic at Maine Medical CenterWhat Happens During Your Visit

Visits take up to 2 hours.  A doctor with expertise in cancer genetics and a genetic counselor will talk with you about:

  • Your family and medical history focusing on cancer
  • The risk of cancer for you and your family due to genes, where you live and work, and lifestyle (such as what you eat, drink or smoke, how much physical activity you get) on cancer risk
  • The hereditary cancer syndromes and patterns of inheritance that may exist in your family 
  • Ways to screen for cancer and how you can reduce your risk 
  • Risk to other family members 
  • Genetic testing, if indicated

Billing and Insurance Information

All services provided will be billed to insurance. For those at risk, most insurance carriers reimburse the cost of genetic counseling and testing. The federal Genetic Information Nondiscrimination Act (GINA) provides protection against health insurance genetic discrimination. View more information the Genetic Insurance Non-discrimination Act (GINA) (.pdf)

Contact Us

The MMC Cancer Risk and Prevention Clinic
100 Campus Drive, Suite 121
Scarborough, ME 04074
207.396.7787
MapQuest Directions 

Genetic Testing: Is it right for you?

Genetic Testing for Cancer: Is it Right for You?
    View our brochure (.pdf) 

Research Studies

Breast/Ovarian Cancer

Genomic Analysis of Breast and Ovarian Cancer in Families (.pdf) (University of Washington, King Laboratory) 

Cowden Syndrome - The PTEN Study (Cleveland Clinic, Eng Laboratory) 

Li-Fraumeni Syndrome - Li-Fraumeni Syndrome Study (National Cancer Institute) 

Colorectal Cancer

  Familial Adenomatous Polyposis (FAP)/Attenuated Familial Adenomatous Polyposis (AFAP) 

FAP-Mutation Negative Study (.pdf) (Huntsman Cancer Institute)

Clinical Trial for Patients with FAP or AFAP (.pdf) (Huntsman Cancer Institute)

Pancreatic Cancer

Screening for Early Pancreatic Neoplasia  (Cancer of the Pancreas Screening or CAPS4 Study) (Sidney Kimmel Comprehensive Cancer Center)

Prostate Cancer 

The Prostate Cancer Genetics Project (PCGP) (.pdf) (University of Michigan)

General link to search for all clinical trials: www.clinicaltrials.gov

Resources

Attenuated Familial Adenomatous Polyposis (AFAP) 

Breast Cancer Prevention Resources

Cowden Syndrome 

Familial Adenomatous Polyposis (FAP)

Hereditary Breast and Ovarian Cancer (HBOC) 

Hereditary Non-Polyposis Colorectal Cancer (HNPCC)/Lynch Syndrome 

Hereditary Pheochromocytoma & Paraganglioma 

Li-Fraumeni Syndrome (LFS) 

Multiple Endocrine Neoplasia Type 1 (MEN1) 

Multiple Endocrine Neoplasia Type 2 (MEN2) 

MYH-Associated Polyposis (MAP) 

Peutz-Jeghers Syndrome (PJS) 

Von-Hippel Lindau (VHL) 

General genetics resources 

 

 

 

 

 

Cancer Risk and Prevention Clinic at Maine Medical Center

View our Cancer Risk and Prevention Brochure (.pdf)

 
 Genetic Testing for Cancer: Is it Right for You?
View our Genetic Testing: Is it Right for You? brochure (.pdf)
 

22 Bramhall Street | Portland, Maine 04102-3175 | 1-(877)-831-2129